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April 25, 2010

Week 3 - Post Treatment

When is this supposed to start getting better? Not a whole lot of change from last week. Michael continues to have moments where he feels a little better, has a little more energy, but then come those other moments when it seems like nothing has changed at all, or may even feel worse. This I guess is what recovery looks like.

Feedings continue to go well and Michael's weight has definitely stabilized. With 2,100 calories per day and very little activity, you might think he would be gaining some weight back, but it looks like he needs pretty much all of those calories funneled towards healing.

Mouth/throat sores, mucus, and fatigue still dominate the symptom list. Michael thinks that the mucus may be a little less, but as a result some of the sores are not coated or protected as well by the mucus and they hurt, really badly, a lot, often. Swish, gargle, spit, groan, swish, gargle, spit, groan, repeat again and again. Treatment ended 25 days ago today, how much longer is it going to take to get some relief?

Yet, despite all of this, Micheal continues to keep up with his course work so he can graduate next month. Michael appreciates his teachers for their support, encouragement and understanding. It is a good outlet for Michael, something that is of keen interest, a positive distraction with an end goal. AND, it IS baseball season after all!

Grandma Teresa enters her last week with us and it is making us all very sad. She has recently been promoted to Chief Cheerleader since no matter how bad Michael is feeling, she is always there with a cheer, a word of encouragement, a compliment, a fist pump: "Mike, you are looking good today", Mike, it is good to see you downstairs", Mike, any day now it will be better". She is amazing, amazing, amazing.

mum liam1.jpg

Posted by Claire at April 25, 2010 10:05 PM